Update

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Update

Postby MandysMom » Sat Dec 16, 2017 3:17 am

If Medicare sends their approval, Mel starts new chemo next Wednesday. This will be a combo of Opdivo and Ivolumab, two of the new immune type chemo in a clinical trial designed to treat people witn rare tumors which have failed other treatment. It will be given by IV, or he may decide to get a port in his chest, as his left arm can't be used and veins in right are getting harder and harder to use. Opdivo will be every six weeks and the other overy other week. The nurses say most people only get some nausea with these drugs perhaps a bit worse on weeks together. Will be praying it stops cancer and does not flare his psoriasis. The clinical trial is nation wide at several sites, luckily one at UCD where we go. Trial,pays for drugs and Medicare for the medical care. Unsure how long he will need the drugs, but first we have to see if they can halt growth of cancer. It's going to be a busy next week: labs Monday , visit nurse practitioner Tuesday so Dr can authorize final approval for trial, and Wednesday at 9 nurses put in IV, draw trial labs, and chemo begins. Hopefully on time because we need to be at audiology by 2 for hearing test then to ENT Dr to evaluate results of audio gram. Long daupy, then home through rush hour probably about 4. Fortunately he will not need chest tube drained that day.
Velda
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Re: Update

Postby avalen » Sat Dec 16, 2017 11:05 am

Prayers for this treatment to bring good results
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Re: Update

Postby Irmi » Sat Dec 16, 2017 11:10 am

Velda, wishing you & Mel the very best and praying for good outcome.
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Re: Update

Postby Bethers » Sat Dec 16, 2017 11:18 am

Velda, here's hoping Medicare approves and that this WORKS!
Beth
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Re: Update

Postby retiredhappy » Sat Dec 16, 2017 11:58 am

Velda, you have my prayers.
Karen West
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Re: Update

Postby Rufflesgurl » Sat Dec 16, 2017 12:31 pm

Velda praying this will be the right mix so you and Mel can have a Merry Christmas!!

Linda
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Re: Update

Postby bluepinecones » Sat Dec 16, 2017 1:00 pm

Sending good wishes for success
The only major handicap in life is a bad attitude!
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Re: Update

Postby MandysMom » Sat Dec 16, 2017 1:09 pm

Thank you everyone. It's been a long haul but if this turns out to be the answer it will be worth it. Merry Christmas everyone.
Velda
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Re: Update

Postby Liz » Sat Dec 16, 2017 4:00 pm

From personal experience, a port will make it much easier for him with frequent treatments. Prayers for positive outcome and little or no side effects.
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Re: Update

Postby grammynmaggie » Sat Dec 16, 2017 5:50 pm

Send ing prayers..
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Re: Update

Postby snowball » Sat Dec 16, 2017 11:13 pm

praying of course hoping as well that it will be the answer!!!
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Re: Update

Postby monik7 » Sun Dec 17, 2017 5:30 pm

Mel and you will be in my prayers Velda. Praying all goes well.
Sandi
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Re: Update

Postby chalet05 » Sun Dec 17, 2017 6:40 pm

Velda, hoping this is the answer to a lot of prayers!
Anita
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Re: Update

Postby MandysMom » Mon Dec 18, 2017 2:53 am

Thank you everyone! The support means so much.
Tomorrow morning we hope to hear by 11 that Medicare has approved some can go for blood work as the precursor to chemo start.
Velda
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Re: Update

Postby BirdbyBird » Mon Dec 18, 2017 1:05 pm

I'll be thinking of you both as you continue this journey.
Tina and the furry companions...Lark, Audrey and Jane
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